Depression and Identity Politics

I was talking with a friend the other night about self-identification, and the way diagnoses can become a huge part of how we view ourselves.  I got to thinking about how I define myself in relationship to my depression, which is an illness.

I do define myself by a number of identity traits that are or are not inherent.

So, for examples, I consider myself a Jewish person.  Jewish first, person second, not because my personhood is necessarily subordinate to my Judaism, but because my Judaism informs such a huge part of my life that it's only reasonable the adjective should come before the noun.

I am a woman, or, following on the prior paragraph, a female person.  For that matter, I'm a cisgendered female person.  Again, the vast majority of my outlook on life, the decisions I make, are based from a cisgendered female perspective.

To make certain I'm not leaving those parts of myself that are privileged unmarked, I am a white person.  At the same time, I am a person of Russian and Polish descent.  And here we see where the "person" comes first.  My whiteness defines me because it inherently defines my experience in relation to others.  My heritage does not.  It is a part of me, it does not encompass me.

I am a writer, because I am driven to write, because I write in my head, because writing is something I could not live without.  I am a person who plays bridge, a person who swing dances, because I do those things, but the world would go on turning for me were they to disappear from my life.

Which begs the question: am I a depressive, or am I person with depression?  I like to think it's the latter.  I like to think that the illness does not control so much of me that it comes before my rational, even normative--to a degree--thought process.

People with cancer are not cancerous, or "cancer people."  People with asthma generally do not define themselves as asthmatic in terms of personality, in terms of what drives them as people.  Obviously, these are not direct parallels, since, outside of brain cancer, neither of these illnesses affects the mind, and how our mind works is so often how we define ourselves as human beings.  Still, the fact remains, it is not considered healthy to define ourselves by our physical maladies, and yet it seems to be no surprise to people when persons with mental illnesses see that as a driving force for our personalities.

I argue that they are certainly part of us.  Perhaps even a significant part.  But I also argue that we, like people with MS or Lupus or Crohns, are doing our best to get along despite the presence of the disease.  It informs our personalities, it should not define them.

To wit: we are not mentally ill persons; we are people suffering from mental illnesses.

Over the Rainbow: Expectation Management for Depression

My therapist once told me that a study done showed that for most people, the best parts of a vacation were the anticipation of it, and the memories of it.  I found this fascinating, since I have a rule about anticipation of anything.  It's a pretty simple rule: I don't do it.

My sister was recently pregnant with the first kid between me and my two siblings.  People kept asking me if I was excited, and I kept lying and saying yes.  The truth is, excitement is part of anticipation, so if I can help it, I don't do it.

Here's the problem with anticipation and excitement: both are forms of expectations.  And expectations, more often than not, at least for a depressive, are a really good way to get yourself disappointed.  And disappointment is a stronger trigger than almost anything I've run into over the years.

So why do I lie about this?  Do you know how it sounds if someone asks you if you're excited about your soon-to-be-born nephew and you say, "Not really," and shrug?  All of sudden, you're somehow that psycho.  You can try to explain that expectations are a thing you don't do, but people just look at you and nod, and you can tell they're thinking there's definitely something wrong with you.

I could be wrong, but I don't think depressives have any more unrealistic expectations of life than anyone else.  I think it's that we don't handle the disappointment of life not conforming to our expectations as well as someone with "normal" brain chemistry.

I suspect this is also related to why depressives have a reputation as being pessimists.  Honestly, science itself is kind of all over the place on this issue.  One theory suggests depressives hold a negative bias on the world, the next suggests that depressives are realists and non-depressives hold a positive bias.  It really just depends on what you're reading.  But science aside, popular views of depressives are as pessimists, or persons with a negative bias.

I'm not coming down either way in this post.  But I definitely do not believe that striving simply not to have expectations of a situation--positive or negative--makes me a pessimist.

The reason I'm writing about this is that lately my ability to suppress expectation has been, at best, fluctuating.  And in fairness to the popular view of depressives as pessimists, it is easier when, if I'm going to have expectations, they're low, or even negative.  That means anything greater than what I was expecting is a pleasant surprise.

Positive expectations, however, are a real problem.  A couple of months ago, for reasons that are too long to go into, it looked like I might get a full-time job.  And for the two to three weeks where this seemed like a real possibility, I was incredibly happy, which might be an argument for positive expectations.  The problem is, when it didn't happen, I spent the next month so low that my therapist consistently kept me late and was worried that I was a danger to myself.  I probably was.

I like to think I'm getting back on track of being even keel and without expectations.  A lot of times to do that, I have to hold to negative expectations until I can wipe the slate completely.  Again, this probably leads people to believe I'm a full-time pessimist.  Instead, what I strive for, and what I suspect a lot of depressives strive for, is a completely neutral slate.

All this is to say, next time you ask a person if they're excited about something, be it a new job, a trip, a new baby, whatever, if they hesitate, or don't give you the exact answer you're expecting, consider for a moment that excitement might be a dangerous state for that person.  Better yet?  Ask the person how they're feeling about the subject, rather than asking them if they're feeling the "normal" emotion, or what they're "supposed" to be feeling.

Everyone, depressives or otherwise, deals with life's events differently.  Not making assumption goes a long way toward making those who don't function within what we've codified a "normal" emotional sphere less like outsiders.

Reach Out and Touch Someone: the Effects of (In)Visibility on a Community

For the most part, response to the article I shared in lastweek's blog was positive.  Those who were upset by it mostly kept quiet, which I consider to be the high road, and appreciate.  I had some people disagree with me, which was also fine, in that I could listen to them and then move on.  I don't need the world to agree with me on my personal opinions.

I chose to write that article for a couple of reasons.  Right now, Jewish Family Services ("JFS") has paired with National Alliance for Mental Illnesses (NAMI) to do a mental health awareness campaign.  So far as I can tell, this largely involves sending out fliers that proclaim, "It's okay to talk about it."  Not that I don't appreciate the funds spent on the fliers, but visibility, especially for something with this much stigma attached, takes a little more effort than that.

The other, connected-but-not-identical reason, is that I think visibility is important in and of itself.  Regardless of my community's "push" for it, just standing up and saying, "Hey, I have this problem," allows other people with the problem to feel less alone.  More than that, it allows them to feel less broken.

So, why did I write the article?  I've talked about visibility before in this blog, and I will probably talk about it again.  As far as I'm concerned, particularly for persons with mental illness who are out in the day-to-day world, visibility is the number one issue facing mental health awareness.  As such:

I did it for the mom who contacted me and said, "Thank you," because her daughter suffers from mental illness.

I did it for the wife who called me, and thanked me, because after reading it, her husband finally opened up and talked a little bit about his depression.

I did it for the aunt who talked to me about her nephew's struggles.

I did it because mental illness, by definition, is invisible.  If I get up in the morning, and do what I am supposed to do, be that work, or chores, or my volunteer positions, I must not be depressed because depressed people don't get out of bed.  Complete, disabling depression is really the only "visible" kind.  And even there, the problem is still invisible, which is why persons who are entirely disabled by it get comments like, "You just need to try harder," or "Staying in bed isn't working for you, why don't you try something else?"

I recently read about a friend of mine's mother asking her why she was so depressed when her life was going so well.  She had no "reason" to be depressed.

My friend's nephew, who's in his teens, said, "Saying you don't understand why a person is depressed because their life is going well is like saying 'I don't know why you have asthma, there's plenty of air in here.'"

Asthma is visible.  Nobody doubts somebody is asphyxiating, or thinks someone is doing it for attention, or because they're just not thinking positively about it.  This is the same with every virus, bacterial infection or disease we can "see" in some way.

Depression, particularly depression in functional depressives, is invisible, which heightens the isolation that the disease already causes.  If you are able, if it is safe, and you are comfortable, standing up and saying, "Hey, I have this disease," takes just that little tiny bit of stigma away.  It might let one person know she is not alone.  It might let another person say aloud, "I have that, too," which might affect yet another person.  You never know.  But it might.

It's Not a Happy Pill, It's an Anti-Depressant

In 2007, I went on anti-depressants.  This is notable, because I was diagnosed as needing to be on medication in 1999.

Why the eight-year hesitation?  A few things:

1.  Anti-depressants have a HUGE stigma to them.  The term "happy pills" in an of itself is an issue, it suggests that people who need--not want, NEED--to be on these kinds of medications are in fact just looking for an easy out.  It's as if we're somehow just going to our doctor instead of down the street to score some illegal substance that makes us feel better for a few hours.

To illustrate, here is a comment once directed at me by a family member.  A family member, who, by the way, is nominally in the health industry:  "Yeah, anti-depressants are great in the wake of, say, a tragedy.  I took some [when my father died] and they helped me to get through it.  But you can't live your life on a pill just to make everything easier."

In other words: stop being weak.  The rest of us are just fine without pills to help us get through the day.

2.  Anti-depressants come with side-effects.  One of the most common is significant weight gain, which isn't fun for anyone, but for a woman--and, in my case, a woman who already has societally-induced body dysmorphia--that can be devastating.

On one of them, I stopped sleeping.  On another, I was so nauseated that even basic toast wanted to come back up.

Additionally, they can have counter-indications.  I was on Prozac long enough that it started CAUSING suicidal ideation, rather than alleviating it.  They also cause long-term liver damage, which means they essentially shorten the lifespan of almost anyone on them.

To sum up: they are not fun and are terrible on your body.

3.  For me, I was terrified.  What if I went on them and they didn't work, and this was what life was like for the rest of it, a very possible seventy or more years?  More importantly, what if I went on them and they didn't work because there was nothing wrong with me other than being lazy and pessimistic and a bad person?

In the end, though, I had to try.  Because, honestly, things couldn't get worse, and the hope, however small, that they might get better was impossible to turn away from.  My medication history has been full of ups and downs.  It took several tries to find the right medication the first time, but I will never, not if I live to one million and three, forget the feeling I had when the right one--Lexapro, at that time--kicked in.

It wasn't sudden, it was slow, but there was one day when I got home from work and the gym, and wanted to do something that wasn't sleep.  I had the feeling tomorrow might be a pretty good day.  I felt like ticking a few things off my to-do list.  And I thought, "Huh, look at that.  There's a person in there."

And then I cried.  Because for the first time since I could remember, I could feel something that wasn't soul-numbing hopelessness.  Even if it was sadness that I'd waited so long to go on the meds, it was real, an emotion, not just a blanket of brain chemical malfunction.  And, as it turned out, when on meds that work, I'm actually pretty chill about a lot of things, even things that objectively suck.

Now, let me be clear: when I am on anti-depressants that work, not everything is easy.  Life is still life.  It is still stressful, and I still have to accept that I am not going to get a lot of things I want or wish for.  People can still be hurtful, and loss still occurs.

The difference is, my brain's default reaction to all of this is not, "What's the point?  Why should I bother with this anymore?" or, at the worst, "Everything and everyone would be so much better off if I just sat down with a bottle of pills and disappeared."

That's not a happy pill.  I've never taken any hardcore street drugs, but from what I have been told by people who have, it's a COMPLETELY different sensation.  What's more, it's ephemeral.  You come down from it.

Anti-depressants don't cause happiness.  They cause the brain to work the way it's supposed to.

Here's the truth: being on anti-depressants is a pain in the ass.  Forget all the stuff I mentioned above, okay?  Your body gets used to them.  And you slip back into depression.  And sometimes the best they can manage is to keep you from living in a haze of suicidal ideation.  Sometimes it takes years to find the right combo, because just having that much help makes it feel like they're working.  And, to some extent they are.

I have changed meds seven times since 2007.  Every time is a gamble.  And for years at a time, I have been willing to accept, "not actively suicidal" as "meds are working."

I'm lucky right now.  I'm on the one-two-three punch of Welbutrin, Lexapro, and Abilify and it WORKS.  It works in the way where, when I have free time, I actually want to read or write or watch some television, instead of sleep.  It works where I can do things like plan ahead: go to the grocery store with an actual list, and come home and make meals for the week.  It sounds simple.  It's not.  It's the difference between a life that is just made up of days of forcing myself out of bed and to do every little thing that has to be done until I can get back in bed, and days where my life is actually happening, and I'm an active participant in it.  And because they actually work, instead of just providing base-stabilization, it's the first time since 2011, which was the last time I was on a combo that fully worked, that I can remember who I'm like as a person underneath the depression.

Right now, my insurance is refusing to support the Abilify, which means I'm going to have to appeal and try and figure out another way if they still refuse, since it is $830/month, which is, you know, outside my ability to afford.  I'm still underemployed, and still have been for over two years.  My rabbit has an ear infection that will not go away, and my dog vomited directly where I sleep on my bed while I was dancing Friday night.  And you know what?  It's all okay.  I'll find a way to afford the drug, because I need it, and I have always figured out ways before.  My rabbit is almost nine years old and this is her first ear infection, which is a near miracle.  The puking forced me to clean my mattress, which really needed it.  And I'm in the process of interviewing for a job I might get.  If I don't, well, back to the drawing board.

I cannot emphasize enough: these drugs aren't happy pills.  They do not blind me to the things that I'd rather NOT happen in my life.  They don't give me moments of ecstasy.  They allow me to COPE and to live my life without the constant specter of suicide.

If you or someone you know is avoiding medication because of stigma or fear, I cannot stress enough that neither of those are good enough reasons to continue being miserable.  Please, please try, or get them to try, talking to a prescribing doctor.  Maybe meds aren't for you.  But maybe they are.  And maybe underneath how terrible everything is, there's a person, screaming that zie just needs a little help, just a shove in the right direction.  Get yourself, or try to help the person you love get that shove.

"It's like...": Talking About Depression Through Similes and Metaphors

As someone who was on Prozac for two years, the thing I still think of immediately upon hearing the word is the commercials they used to have, with a cartoon person under a cloud that followed her around.  I remember thinking, "Yeah...no, it's not like that."

It's not that the single-person-rain cloud is a terrible metaphor, but it's really not a great one, either.  For one thing, we use that particular metaphor to refer to people who bring drama or other things we don't like to a situation, regardless of whether that person is actually mentally ill.  It's specificity, therefore, leaves much to be desired, and  more than that, it lumps those of us who are actively fighting against that "cloud" with persons who embrace it.  Another thing is, while we all might find Pigpen from "Peanuts" cute, we also all think he could go and find himself a bar of soap and some water.  In other words, when we see artistic representations where only one person is being affected by something, we tend to put the onus of dealing with it on that person without much consideration for what that means.

Obviously, metaphors and similes are contextual.  Not every one is going to apply in every situation.  But, here are a few solid and decently transferable ones.

1.  The broken arm:  I cannot take credit for this one, it comes from a friend whose brother is on the Autism spectrum.  Hir mom once told hir that if hir brother had a broken arm, nobody would expect him to pitch a baseball game with that arm.  But because nobody could SEE the Autism out front, people often expected life skills of him that were the equivalent of asking a kid in a cast to pitch that ball.

Depression is the same way.  No, you can't see it.  That doesn't make it less real than a broken arm and it certainly does not make it less debilitating or limiting.  Some people with depression CAN do everything persons without can.  Others cannot, plain and simple.  And even the ones who can?  Are struggling at least ten times as much as a person with normal brain chemistry to complete the same exact task.

2:  The minefield:  Also not mine.  I wish I could remember who I picked this up from.  Living with depression is like walking through a minefield every day, except that only the person with depression knows there are mines.  She spends all day avoiding them, and if she gets to the other side of the field, everybody acts like it's not a big deal, no accomplishment, nothing to give her a shoulder squeeze about and say, "Hey, well done."

HOWEVER, if she accidentally trigger one of those mines, it's huge and ugly, there's a good chance others get hurt and everyone blames her.  She didn't actually SET the mines, she just couldn't avoid one.  Whether she couldn't see it, or it wasn't possible to jump over, or whatever, the triggering was not intentional.  But she gets in trouble for it, all the same, when every other day, hurtling and running and desperately trying to cross that damn field, everyone takes her actions for granted.

3.  The monster:  This one is mine.  Every day I get up and I'm being attacked--think of this in physical terms.  The attacker is up to the person creating the metaphor.  Mine is amorphous and monstrous.

But I'm being attacked.  And I'm struggling against my attacker, throwing kicks and punches, screaming for help, trying all kinds of things, waving my hands.  It's not just that nobody hears me--although many people don't--it's that people hear and walk by anyway.  In my head, I'm always on a busy street, and people know what's happening, but they still walk on by.

The thing is, at the end of every day, the monster resolves itself into me.  Because, as one of my friend with depression once said, "The problem is, my brain is trying to kill me."

I agree, to a certain extent.  But really, my brain is trying to do the maximum amount of harm UNTIL it can kill me.  Which means that, yes, the monster I'm fighting?  Me, and only me.

This is a short post, because I don't want to muddle this issue, it's too important.  Verbal and visual representation of mental illness in a positive way is sorely lacking, and if I can inject just a little bit of it into the common rhetoric, I will be pleased.

To sum up: things to avoid are more broad metaphors and similes--pick something specific, like a broken arm, like a physical attack, a minefield.  Avoid metaphors and similes that are used for sadness, because sadness is different.  Use descriptive terms and EXPLAIN why the two are good comparisons.

And please, if anyone has other good metaphors/similes, leave them in the comments.

ETA:  A comment was left with the World Health Organization's video on depression.  This metaphor did not work for me, because it needed a LOT of narrative explanation, which I try to avoid, and because it's based on a dog, which is something I have positive associations with.  That said, it might work for others, so I am glad to have the resource.  Thanks, Jay!